My diagnosis

When I got my diagnosis almost a year ago I spent so much time searching for answer and information about my disorder. I found a Factor V website and a yahoo group for women just like me. It was reassuring to find other people in the same situation. These women had experienced miscarriages and stillbirths just like me, but its so sad that they understand. Many also had never experienced any symptoms before their babies were in distress just like me.

http://health.groups.yahoo.com/group/FVL-PG/


The pregnancy loss board, where I spent most of my time after the loss, never had any women like me. I would stalk the posts looking for another women who might have the same blood disorder. I never found them. Then in November I started seeing TONS of them. I guess everyone came out of the woodwork with their diagnosis.



http://boards.thenest.com/Boards/ShowForum.aspx?ForumID=426


Anyway, I wanted to share some of the resources that I found for my two diagnosis - heterozygous Factor V Leiden and Heterozygous MTHER a gene. Here is the Factor V website http://www.fvleiden.org/


There is also great thread on babycenter.com under high risk pregnancies called Lovenox Ladies. Its full of women who taking blood thinners. They have great tips, tricks, and advice.



http://www.babycenter.com/





I also recently came across a group for MTHFR on yahoo http://health.groups.yahoo.com/group/immunologysupport/



An article about Factov V http://www.geneclinics.org/profiles/factor-v-leiden/details.html



Hopefully there will continue to be new research about Factor V and pregnancy loss.



The best site out there I have found for pregnancy loss is Share.

http://www.nationalshreoffice.com/ they are a National organization that supports bereaved parents. They are the best organization ever. I'm very lucky that they have their National Headquarters here in the St. Louis area.